Note: This aidpage was started as a comment on "
Aidpage of busymom"
Hi, I am new here, and frankly writting as a last ditch effort to try and find some more help... We have a little boy with severe and rare cystic fibrosis and a feeding tube (g-tube). I have tried applying for every state aid available, and even if he is accepted, financially we are turned down. My husband works full time, but because of all the monthly out-put being so high, and his medication and perscription formula being a priority, we are litteraly hanging on by a thread.We have insurance through my husband's employer, but our co-pays are still through the roof. When our son was first diagnosed with c.f. the local doctors that take care of CF babies and patients, were out of net work on our policy with Blue Cross Blue Sheild, so form April 05-Sept 05, we had to pay out of pocket for all his many visits and things related to the CF and his medications.There were only a few things they partially reimburshed us for. In the first year of his life he had 3 surgeries during that time, including the g-tube placement and a Nissen wrap(tying the bottom of his espoghagus with the top part of his stomach)plus that surgery ended up messing him up, and he was hospitalized for 6 weeks form Nov-end of Dec, and he was traumatized so much durring that time is when he stopped eating by mouth completely. Currently we still spend over 500/month on co-pays and have a 4,000 deductable, with 1000 for therapies. Since it is the beginning of the new year, we have to pay out that deductable before the 80/20 plan kicks in, and the full 4000 before he will be completely covered.I have written to a few foundations, and we have been able to receive some aid with our morgage and a few bills from time to time from a few local churches and private parties which we have been very thankful for. It has helped and we are incredibly greatful for those blessings, but we are now again struggeling towards the end of every month.Almost all of our bills are at least a month behind, and my husband is wroking all that he can, plus trying to work another home bussiness on the side to try and bring in a little something extra. I started selling picture frames I have been painting, and just anything we can do to raise some money and help. My son also has to have occupational therapy to help he swallow. He hasn't eaten solid foods by mouth for over a year. We had wanted to try and take him to a feeding clinic in Richmond Virginia that we heard of, but it will cost way to much for us right now. We just need help keeping his therapy going as it is. If there is anyone, who, for whatever reason might see this, and can help us financially it would be a blessing beyond measure. If you personally can not help, but you think you know someone else who could. Please, please check out my son's web site, www.contrerashome.us
there is a paypal link there and you can make a donation on line. There is a sweet video on the bottom of the picture page, and I would ask that if you have a few minutes, please watch/listen to it. God bless you, and I will pray that someone sees this soon. We desperately truely do need the help. We appreciate your time, care and prayers.
